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Community members to move for Cure

October 6, 2012
By LEVI PASCHER , The Leader Herald

GLOVERSVILLE - The Community For A Cure will hold its fourth annual 5K run/walk to benefit the Juvenile Diabetes Research Foundation at Boulevard School on Sunday.

Registration begins at noon, and the race starts at 1 p.m.

Perry Paul, one of the lead coordinators of the race, said his daughter, Madison Paul, was diagnosed with type 1 diabetes when she was just 8 years old.

Type 1 diabetes, also called juvenile diabetes or insulin-dependent diabetes, occurs when the body's immune system destroys beta cells in the pancreas.

The beta cells produce insulin, the hormone needed to transport glucose in food to cells throughout the body for energy. Without beta cells, insulin can't be produced, and the glucose stays in the blood, where it can damage organ systems in the body.

Now, Madison wears a tubeless insulin pod on her arm - technology useful in recording medical data for use on medical charts.

Fact Box

If you go...

Event: Community For A Cure's fourth annual run/walk to benefit the Juvenile Diabetes

Research Foundation at Boulevard?

Elementary?School in Gloversville.

When: Registration begins at noon?Sunday and the race starts at 1 p.m.?People also can register in advance.

Cost: In advance, $15 for adults and $10 for those 17 and younger. At the event, adults will pay $20 to register

For more information, visit www.active.com

The stress of worrying for their child's safety and of the financial burden can take a toll on parents, Paul said. The expenses of diabetes on the typical middle class family also can be very difficult to handle.

Paul said the pod system Madison uses improves the quality of her life so she can play sports and swim, but that comes with significant cost.

He said the family must purchase pods six times a year, which costs $1,350 every time. Since the family has insurance, they pay $270 out-of-pocket each time they get more pods.

He said there are several other expenses, including insulin for $60 per month, test strips for $70 per month and needles for $20 per month. All of the additional expenses amount to the $3,420 a year that the Paul family pays.

No one knows what causes type 1 diabetes, which can be diagnosed at any age, but according to the Juvenile Diabetes Research Foundation, scientists believe autoimmune, genetic and environmental factors are involved.

Josh Morton and his mother, Nicole, have participated in the event for several years now and look forward to helping JDRF gather money to hopefully find a cure.

Josh was taken to a doctor by his mother after she noticed that he was missing school, constantly thirsty and frequently urinating, which are type 1 symptoms. When he was checked out, the doctor noticed that his blood-sugar level was much higher than normal.

"I have a lot of friends that support me," he said. "Sometimes, it isn't so good because I can't just leave to go with my friends because I have low blood-sugar or have to pack my supplies."

Paul said the Community for a Cure event typically makes between $7,000 and $10,000, and last year, the event brought in 180 participants. This year, organizers hope to increase that number to 250 or more, Paul said.

Boulevard Principal Thomas Komp said he is honored to host the walk at the school and it takes the entire district, and members of city government to make it possible every year.

"We have been holding the race here at the school for five years and it is a great opportunity to help in our community," Komp said.

The cost to register in advance will be $15 for adults and $10 for anyone 17 years old or younger. Advance registration can be done online at www.active.com.

People also will be able to register at the event. However, the cost will be $20 for adults the day of the activities.

A one-mile "fun walk" will take place along with the 5K race.

The event will last about four hours and include refreshments. There will be a bounce house for children and music thanks to DJ Party Tunes donating his time at the event.

All of the money donated at the event will go to the JDRF to attempt to find a cure for the disease. The JDRF was founded in 1970 by parents and was awarded $1.5 billion for research. The organization says 80 percent of its expenditures go toward research and research-related education.

Levi Pascher covers Gloversville news. He can be reached at gloversville@leaderherald.com

 
 

 

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